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The idea for this latest LTNMD study was developed financed by the work done by international the project Heart Songs the Stavros Niarchos Foundation. The objective of the project is Heartsongs, a worldwide network out of professionals from different disciplines, the parental and the children, develop a shared vision of comprehensive care for kids with LTNMD shares. In addition to the U.S., countries of Heart Songs project in the UK, Australia, France, Denmark and Greece. Of the project aims project which the principles of pediatric palliative care in the custody of humans lives having LTNMDs integrate. PPC can be used as an integrated, interdisciplinary model of care, emotional, spiritual, development, and comprises size are described. The Heartsongs ‘ International Consortium develops recommend on promising practice into extensive and integrated care. The two-year project, which open Geller and Rushton co-director, with an summits through England as April this year and a second in a second top Greece place in March 2009. Hopes of a Heart Songs II to call for the extending the project to further European countries and states into South America, Asia and Middle Eastern are.

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Rushton and Geller tell results of national levying which health care practitioners in a presented to of developing focus groups the regional muscular Dystrophy Association clinic directors and pediatric palliative care specialist , clinical and policy recommendations to improve ethically appropriate care of children to LTNMD. Be Drs Rushton and Geller research and work will be. Through their involvement improve the quality of life out of patients and their family, with patients and families in communication and decision making, and motivation improve communication and well-being to interdisciplinary healthcare professionals Besides her work in the Berman Institute, Gail Geller, ScD MHS be a professor at School of Medicine with a joint appointments in the the Department of Paediatrics and the Bloomberg School of Public Health sections of Health, performance and corporation and Health Policy & Owners. Addition to her membership of the Berman institutions, Cynda Hylton Rushton, RN, is program director of the Harriet Lane Compassionate Care Program from Johns Hopkins. Playground centers and adjunct professor at School of Nursing It is an Robert Wood Johnson Executive Nurse a Fellow.